Tuesday, May 11, 2010

Peanut Update

Ryleigh had a pediatrician appointment this morning. She got weighed, measured, checked out, and punctured with needles :-(

She has gained 7oz since we last weighed her at the nutritionists 2 weeks ago. Considering she hadn't gained weight in the previous 3 months I am very thankful for those 7oz. The pediatrician said it seems like the nutritionist is really helping. Yay for that because adjusting her diet is the easiest solution to this whole thing.

Of course the doctor still said we should get her tested for various other things, "just in case". She even cited some cases where doctors didn't pick up on something and then got sued. So, I'm still really feeling like the doctors are just trying to cover their butts.

I do have two major annoyances though.

1. The doctors do not communicate with each other. CHOP never sent the paperwork from the G.I. to the pediatrician like they were supposed to. The pedia. didn't even know we had been to see any specialists. So, I was the one to relay all the info from the specialists to the pediatrician. And even though I have been paying attention to what the doctors have to say, I am still only a layman, and I don't like the fact that the doctors are basing their decisions on info I have relayed. What if I forgot something important in my stressed out state of mind? Why can't they just fax over info to each other??

2. Annoyance number 2. Ryleigh's pediatrician is leaving the practice. Therefore, enter doctor #6 who will be working with us to "help" Ryleigh. With a lack of communication amongst the professionals, and no consistency with her primary care physician (one time it was by our own doing, but the other times were out of our hands), I am the only one who actually has the full picture. I am the one who has taken her to all her appointments and listened to all the doctors. I am the one who feeds her and monitors her nutrition. I am the one that has the best grasp on how Ry is doing developmentally. Therefore, I feel like all of this is on my shoulders. Ryan is incredibly supportive and helpful, but when he can't be there to talk things over with the doctors I feel very alone.

2 comments:

JerseyGranny said...

I can and will go to your appointments with you. I can also help with the paperwork thing which I will discuss *offline*. ;)

When's her next appt.?

Deborah said...

AW I understand, that can be absolutely awful. If you need a suggestion Daniel's pediatricians in Washington Township are great. They have four- five doctors I believe but they ALWAYS allow you to request one. It is Dr. Lerch and Amato (256-7950) in the new Virtua building on Hurfville-Cross Keys road. I always ask for Dr. Tamarin, Danny likes her and she's very sweet. They are busy but they always let you take the time to talk things over and will give you a good response. Juat a suggestion if you needed one. Looks like Ryleigh is doing great to me! :)